I went to my first stoma meeting: April the 14th 2010.
It changed my life. The clouds opened and the sun returned. I left full of such excitement.
I had the radio up on full blast, and was singing my little heart out. It was the best and most important decision of my life attending.
I left there deciding to swing my life around. Stop feeling sorry for myself, as I was one of the lucky ones, being on the waiting list for a reversal,
A lot of members didn't have that opportunity, there conditions varied, but were ongoing to deal with. Cancer, crohns disease etc, Things I never knew existed, I was like a sponge, wanting to absorb it all.
I just wanted to hug them all, for they were so strong, there strength and determination to carry on with normal life's, impressed me so much, they all were achieving such amazing results. These strangers without even knowing it, gave me back my hopes and dreams.
What an exciting evening.
The ages of people were varied, I talked to a few, which was awesome, as It made my heart lighter, and questions I had were answered, I was able to leave with a better understanding.
Patience was needed I realized with my swollen tummy, all was a normal healing progress, there was no major fears left, that yesterday filled me with dread not understanding, why there was still pain, and that dropping sensation every time I stood, the lady I was sitting beside, when I told her I still wasn't fully recovered, discribed my condition to the tee, blew me away, she even used my term dropping sensation.
Then another I was speaking to, explained most had a gauze put over there bowel when the Dr's did there surgery, to hold everything in place, I had to hold back tears, at the joy of finually getting some understanding. He explained because I underwent hartmen's procedure and it was an emergency, plus was able to get a reversal they wouldn't of done it, and it would be done then.
I left joining the committee, as I was so impressed I wanted to uterlise the club, set up a support group for the hospital, better understanding and guidance for patients, to let them know, yes it will feel like the end of the world, on waking. But that is only natural.
You will recover and be able to continue with your life, ambitions can still be achieved, You will just need a little time to heal, and rediscover the brilliance of life. You can concentrate on yourself for a change, be number one, which normally we let slip by, putting everyone else's needs before our own, which won't do you any harm, just uterlize the time healing to rediscover your beliefs, relax and enjoy the spare time to reflect about your dreams and wants. You will find it will give you inner peace, and strength.
The guest speaker Andrew Hall, left me amazed with his challenges and success. Living proof of its mind over matter, he was in a wheel chair, yet had his future all planned and on track, I was transfixed listening, he was leaving his mark on my every turn, each path he goes down, people benefit from. I decided then and there I would lead by his example. He gave me a vision. I decided the past seven months, I had visions and goals, but now I was ready to hit them on the head and get into full swing of achieving them. Getting my business up and rolling, once again,
Its strange but I don't want to open another shop, life is to precious, I want to do it at my own pace, get back into gardening, visiting, concentrate on good health.
There was so much just waiting for me to achieve, its 4.45 in the morning, hardly slept with so much stuff running through my head, I just had to get up and start tying, its so exciting.
Join your local support group. You will leave feeling 10 feet tall, with ideas and new understanding, its a shame you missed it all..
Everyone experiences are so different it would be nice for people to be able to read as to how other people conquored there demons. What there hospital stay was like, there thoughts on recovery when they first got a stoma, How long it took, getting back into the work force, a job description of where you are at now. hobbies you achieve, gardening etc, etc, etc.
All new individuals that get colostomy's need to know there is no written plan,,that each of us recover in different stages, But we do achieve an end result. It just takes time.
My new saying now is.
Illness is not a disability. Just a challenge.
Now in 2020 we are all dealing with the Covid 19 Crisis.
I joined GDI in 2009.
My first domain was housebound.ws
I deleted this name is 2012 changing it to kiwitalk.ws